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About2019-08-16T15:33:22+00:00

WE BELIEVE IT’S YOUR EXPERIENCE

Working under the principle that a story tells more than a survey, the T2D Experience Exchange creates an open, safe, and non-judgmental space to share your personal experience.  Our Experience Exchanges are known to kick start new collaborative conversations in how we define, understand, and most importantly improve the outcomes and quality of life of the type 2 patient journey.

We’re creating new opportunities to share the stories of people living with Type 2 Diabetes, in social media, video, the web and elsewhere, to influence, invite and inspire a reimagining of our perceptions of the experience of T2D.

“THERE IS NO VACATION from Diabetes”.

“This year I discovered that there is no vacation from diabetes. I tried. I tried taking a summer off. Bad idea. I tried to take a week off. Still, a bad idea. Weekend? Nope. Not worth it. For those of you who can get away with it — I don’t know how you do it. But I found out that I’m diabetic and every day is a diabetic day. If I want to feel good about myself, feel up for the day, be at my best I have to follow my routine. I can’t take a day off testing. I can’t take a day off my eating routine. I can’t just do what I want. When I do I pay for it.”

Marcia

SAFETY

You’re part of a supportive community. This is a safe place to meet others and share your feelings.

NON-JUDGEMENTAL

There are no preconceived notions. No right or wrong about an individual’s experience. Share without stigma.

TRANSPARENCY

There is no hidden agenda. Our community shares decision-making out in the open.

BELONGING

Type 2 Diabetes can make you feel terribly alone. You’re not. If you have T2D you belong here.

Our Authors

Contributor: Chef Jamie Smye

My name is Jamie Smye, I’ve been Type 2 Diabetic since being diagnosed in 1984. I’ve also worked as a Chef and been in Food Service management for the entire time I’ve been diabetic. To say it’s been a challenge to be around some of the best food available day in and day out, is an understatement. I’ve managed Hotel kitchens, been Executive Chef of chain restaurants and even had 2 of my own restaurants, one in Corner Brook NL and one in Wolfville NS. Through this time I managed my diabetes really well and really poorly. I’ve followed my doctor’s orders and the food guide recommendations with varying results and been in places where I’ve overindulged knowing the affect it would have on me. I’ve had complications, including a stent when I was 40 as well as debilitating neuropathy when walking and sleep were difficult

Within the last 4 years, I embarked on my own advocacy path applying different ideas and points of research to manage my diabetes. During this time I’ve managed to go from 145kg (320lbs) to about 108kg (240lbs) and lower my insulin use by 60%. Some are common sense some are considered alternative but it’s what has worked for me.

As a result, I spend a great deal of time thinking about food & it’s effects! Everything from micro and macro nutrients to holistic herbs and spices and how they affect my diabetic life. As well, as looking at myself as a whole system, including spirit, mind, body and food. I hope to share my experiences, in order to help others see their T2D as a journey to better health and understanding of themselves not just a chronic disease.

Contributor: Diabetes Advocate

Julie De Vos

Hi there, my name is Julie De Vos. I was diagnosed with type 1 diabetes in 1990 and will soon be celebrating (yes, you read that correctly, celebrating) my 30th diaversary! I celebrate because of the life that diabetes has brought me. Many close friends and career opportunities have happened because of this disease. I’ve been involved in the diabetes community from the beginning, starting with the diabetes summer camp I attended in my first year of diagnosis. I later worked as a staff member at that same camp, providing kids and teens the same experience and opportunities I received. It was through that work the flame ignited, and my advocacy and community work began.

During my teen years and early adulthood, my younger brother was diagnosed with type 1, and later, my mother with type 2. I recognized the difference in treatment, community, and patient navigation my brother and I received versus my mother. My brother and I had a team of healthcare professionals and an already established community. While on the other hand, my mother’s primary care physician diagnosed her and sent on her way. Over the years, I have witnessed the degree of difference between my care and that of my mother. While well-intentioned, there isn’t the same opportunity to connect with a community or the dedicated team of healthcare professionals. Nor are there the same number of type 2 organizations, advocacy, or ambassadors that someone with type 1 has available to them.

While my career began in the type 1 diabetes sphere over 20 years ago, it has expanded to include all types of diabetes. I am currently a community manager for an online diabetes publication, a health coach, and a diabetes educator focusing my work within the community. I hope to share my experiences here and to help continue to build the community that T2DXX has created.

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